Our grandson, Nick, who has Cystic Fibrosis just called and said he was headed to St Francis/Via Christi hospital in Wichita for what the Cystic Fibrosis community call a tune up. They just need a time of IV meds under the watchful eye of a CF Doctor.
He has a new Dr since he turned 19 and now considered an adult! We are hopeful that this time in the hospital will help him to feel well. His lung function is down to 50%. He has been waiting for a room to open up and away from others who have respiratory illnesses.
His mother asked if maybe he could check into the hospital here but his Dr said she would rather he came there so she could keep an eye on him. She said she had been looking through his file and noticed he had been on the wrong antibiotic and that is why she felt he wasn't getting better. That is a good and a bad thing!! Good because it sounds like we have a Dr that is on top of things and bad because you don't know how much we have probably paid for some antibiotic that didn't work.
We are headed to Wichita to visit him this evening and he has requested some goodies, Twizzlers, Cheese Chex Mix, Peanuts, Sour Patch candy and of course DR. PEPPER!!!!! I work at ESSDACK an educational service center and they very kindly let us borrow a computer for him to use while in the hospital. They are so good about things like that.
Nick hates going to the hospital and starts working on the Dr to let him go home way before he should. He needs to have patience and let the meds work and just relax. Easier said then done! A good week there might make him feel like a new person!
If any of you that read this would like to encourage Nick his address at the hospital would be Nick Craig, Via Christi, 929 N St Francis, Rm 7043, Wichita KS 67214 or Nick Craig, 713 South Halstead, Hutchinson KS 67501 and Thank You Very Much!
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