A new day, a new year but the same old song and dance from Social Security about Nick's disability. He has had to prove he was born with a disability for 19 years and since he turned 18, a year ago, has to do it all over again. I guess they don't know that you will have Cystic Fibrosis until there is a cure. We would love nothing more then to have a cure and not worry about getting any SSI from the government. They have been turning his check of $226 back into Social Security because they (SS) told them if they didn't he may own money back to them. Lets see on one hand you have a healthy life and the hand holds a check for $226, which would you choose? Which would anybody in there right mind choose. Oh that is right we are dealing with someone in an office somewhere deciding if Nick has a disability when all they have to do is go to the internet and look up Cystic Fibrosis and there is your answer.
I wish so for a different life for Nick. Something that would give him some hope for the future. It is not only his disease but his education, the job market, the family of a mother, father and siblings he should have been able to grow up with. He has had a lot more thrown at him then most people know about. I sort of get upset when people are so set on the sex of a baby just pray for a healthy baby and don't worry about what sex it will be. Give them the best life you can give them with lots of love, a happy childhood and guidance for growing into an adult. He has never had the fun of growing up a care free child, he has always had more weight on his shoulders then a lot of adults have had to carry around. In the last few months there have been some caring people come into his life that should have been there a long time ago. Good people that if they had come into his life a few years ago Nick's life would have been so different. I pray it is not to late and they have the patience to see Nick through until he finally figures out what he needs to do.
I know there are a lot of grandmas out there who feel this way about their grandchildren and I would love to hear from them. My heart breaks for Nick and wish I could do more for him.